Information needs of moroccan elderly cancer patients

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Sihame Lkhoyaali
Meryem Ait El Haj
Mohamed Reda Khmamouche
Narjiss Berrada
Hassan Errihani

Abstract

SUMMARY
Background: Announcing cancer to a patient is not a simple task. Usually doctors fail to inform patients about the diagnosis and it is more likely in older people .The need of information in cancerous elderly is not well established. In developed countries, there is evidence that the majority of old patients are demanding exhaustive information about their disease, treatment and prognosis.
Aim: In developing countries where social and cultural issues are different, perception of cancer in elderly is not well studied. Therefore
we conducted a prospective study on Moroccan elderly cancerous need of information about their disease.
Methods: This is a prospective descriptive study, Conducted in the National Institute of Oncology of Morocco, cancerous patients older than 70 were included. A questionnaire was given to participants. Demographics, disease characteristics, social, economical and cultural features were recorded.
Results: One hundred and fifty patients responded to the questionnaire. Mean age was 73. 72.7% of patients were diagnosed in advanced stages. Illiteracy was found in 76%. 87.3% of patients did not have health insurance. All patients were Muslim, practicing in 97%. 57% ignored diagnosis. 80% didn't want to know further information about prognosis and treatment side effects. Family protection from information was found in 70%.
Conclusion: Moroccan elderly affected with cancer are less demanding of details about their illness.Illiteracy and cultural background may play a major role, Relatives overprotection is also influencing.

Keywords:

Information - Cancer

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References

  1. Greenfield S, Blanco DM, Elashoff RM et al: Patterns of care related to age of breast cancer patients. JAMA 1987 ; 257: 2766-2770,
  2. Arora NK, Johnson P, Gustafson DH, Mctavish F, Hawkins RP, Pingree S. Barriers to information access, perceived health competence, and psychosocial health outcomes: test of a mediation model in a breast cancer sample. Patient Educ Couns 2002;47:37-46.
  3. Ellis P. M, Tattersall M. H. How should doctors communicate the diagnosis of cancer to patients? Annals of medicine 1999; 31(5): 336- 341.
  4. Brandt B. Informational needs and selected variables in patients receiving brachytherapy. Onc Nurs For 1991 ; 18 :1221-9
  5. Harrison DE, Gallowey S, Graydon JE, Palmer- Wickham S, Rich-Van Der Bij L. Information needs and preference for information of women with breast cancer over a first course of radiation therapy. Patient Educ Couns 1999; 38:217-225.
  6. Muthu Kumar D, Symonds RP, Sundar S, Ibrahim K, Savelyich BS, Miller E. Information needs of Asian and White British cancer patients and their families in Leicestershire: a cross-sectional survey. Br J Cancer 2004;90:1474-1478.
  7. Ajaj A, Singh MP, Abdulla AJJ. Should elderly patients be told they have cancer? Questionnaire survey of older people. BMJ, 2001, vol. 323, no 7322, p. 1160
  8. Mitry E. Particularités du traitement des cancers colorectaux chez les sujets de plus de 75 ans. Hépato-Gastro 2003; 10(5): 347-351.
  9. Ajbilou A, Mouhssine-Sananes O. Les personnes âgées veuves au Maroc. Gérontologie et société 2000 ; 95, 141-152.
  10. Giacalone A, Blandino M, Talamini R et al . What elderly cancer patients want to know? Differences among elderly and young patients. Psycho- Oncology 2007 ;16: 365-370
  11. Elkin E. B, Kim S. H, Casper E. S, Kissane D. W, Schrag D. Desire for information and involvement in treatment decisions: elderly cancer patients' preferences and their physicians' perceptions. Journal of Clinical Oncology 2007, 25(33), 5275-5280
  12. Bruera E, Sweeney C, Calder K, Palmer L, Benisch-Tolley S. Patient preferences versus physician perceptions of treatment decisions in cancer care. Journal of Clinical Oncology 2001; 19(11), 2883-2885
  13. Jenkins V, Fallowfield L, Saul J. Information needs of patients with cancer: results from a large study in UK cancer centres. British Journal of Cancer 2001;84:48-51
  14. Meredith C, Symonds P, Webster L et al. Information needs of cancer patients in west Scotland: cross sectional survey of patients' views. BMJ; 313 (7059), 724-726
  15. Haond P. Refus de soins et consentement de la personne âgée. Rev Geriatr 1997;22 (suppl):72-8.
  16. Errihani H, Mrabti H, Boutayeb S et al. Impact of cancer on Moslem patients in Morocco. Psycho†Oncology 2008; 17(1), 98-100
  17. gongal R, Vaidya P, Jha R, Rajbhandary O, Watson M. Informing patients about cancer in Nepal: what do people prefer? Palliat Med. 2006 Jun; 20(4):471-6.
  18. Degner LF, Kristjanson LJ, Bowman D et al: Information needs and decisional preferences in women with breast cancer. JAMA 277:1485- 1492, 1997
  19. Sutherland HJ, Llewellyn-Thomas HA, Lockwood GA, Tritchler DL, Till JE. Cancer patients: their desire for information and participation in treatment decisions. Journal of the Royal Society of Medicine 1989; 82(5), 260-263
  20. Janz NK, Wren PA, Copeland LA et al: Patient-physician concordance: Preferences, perceptions, and factors influencing the breast cancer surgical decision. J Clin Oncol 22:3091-3098, 2004